Good News

You are european? You are Fibromyalgic?

Then here's the best news you've ever heard!

The European Parliament voted a resolution on December 17th, 2008 in order to educates doctors during their studies about Fibromyalgia (and tell them that it is a neurological syndrom and NOT psychosomatic) and they are going also to allocate funds to research in Europe for Fibromyalgia!!!

I think i'm going to cry!!!!!!!!

What is Fibromyalgia?

Fibromyalgia, meaning muscle and connective tissue pain (also referred to as FM or FMS), is a disorder classified by the presence of chronic widespread pain and a heightened and painful response to gentle touch (tactile allodynia).

Other core features of the disorder include debilitating fatigue, sleep disturbance, and joint stiffness. In addition, persons affected by the disorder frequently experience a range of other symptoms that involve multiple body systems, including difficulty with swallowing, functional bowel and bladder abnormalities, difficulty breathing,[4] diffuse sensations of numbness and tingling (non-dermatomal paresthesia),[5] abnormal motor activity (i.e. nocturnal myoclonus, sleep bruxism),[6] and cognitive dysfunction.

An increased prevalence of affective and anxiety-related symptoms is also well known.

While the criteria for such an entity have not yet been thoroughly developed, the recognition that fibromyalgia involves more than just pain has led to the frequent use of the term "fibromyalgia syndrome".

Not all affected persons experience all the symptoms associated with the greater syndrome. Fibromyalgia is considered a controversial diagnosis, with some authors contending that the disorder is a ‘non-disease’, due in part to a lack of objective laboratory tests or medical imaging studies to confirm the diagnosis.

While historically considered either a musculoskeletal disease or neuropsychiatric condition, evidence from research conducted in the last three decades has revealed abnormalities within the central nervous system affecting brain regions that may be linked both to clinical symptoms and research phenomena.

Although there is as yet no generally accepted cure for fibromyalgia, there are treatments that have been demonstrated by controlled clinical trials to be effective in reducing symptoms, including medications, patient education, exercise and behavioral interventions.

Read the Whole article on Wikipedia : [link]
Other site of interest for english speakers : [link]
Site en Français : [link]

HERE are the official documents in french & english

• La déclaration écrite n° 69-2008 "pour la Fibromyalgie" a été adoptée par le Parlement Européen le 17 décembre 2008 - French. Carole Robert is the President of France Fibromyalgie, the association were i'm a member and that helps me a lot with my disease.

• Official declaration - French.

• Actions de l’European Network of Fibromyalgia Associations - French.

• ENFA Video - English.

• Members of the European Parliament (MEPs) adopt written declaration 69/2008 on fibromyalgia initiated by five deputies and the European Network of Fibromyalgia Associations (ENFA). - English.

• MEP's adopt written declaration 69/2008 on fibromyalgia - English.

VICTORY! HAPPY NEW YEAR!